Alagille Syndrome

National network. Founded 1993. Support network for anyone who cares about people with Alagille syndrome, a rare, multi-symptom genetic disorder. Disseminates information. Aims to increase awareness in general public as well as health professionals. Newsletter, phone support, medical advisory board, information and referrals.
Write:
Alagille Syndrome Alliance
10500 SW Starr Dr.
c/o Cindy L. Hahn
Tualatin, OR 97223
Voice: 503-885-0455
Website: http://www.alagille.org
E-mail: alagille@earthlink.net
Verified: 9/30/2008

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: November 12, 2008

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.