Amniotic Band Syndrome

Important
It is possible that the main title of the report Amniotic Band Syndromeis not the name you expected.

Synonyms

Streeter Anomaly
Amniotic Band Sequence
ABS
Amniotic Deformity, Adhesions, Mutilations (ADAM) Complex
Amniotic Bands
Amnion Rupture Sequence
Constriction Band Syndrome
Congenital Constriction Rings
Limb Body Wall Complex
Streeter Bands
Streeter Dysplasia

Disorder Subdivisions

None

General Discussion

Amniotic band syndrome is a well-known condition potentially associated with a variety of different birth defects. It is important to note that no two cases of amniotic band syndrome are exactly alike and that the associated symptoms are highly variable. The severity of amniotic band syndrome can range from a single, isolated finding to multiple, disfiguring complications. The arms and legs are most often affected. The head and face and, in some cases, various internal organs can also be affected. The exact cause of amniotic band syndrome is unknown and controversial. Two main theories have been proposed to explain the development of the disorder. One theory attributes the disorder to causes that arise internally within the fetus (intrinsic theory); the other theory attributes the disorder to causes acting upon the fetus externally (extrinsic theory). It is likely that both internal and external factors can cause amniotic band syndrome, and that the cause of the disorder in one infant may be different from the cause in another infant.

Resources

Reach: The Association for Children with Hand or Arm Deficiency
P.O. Box 54
Helston
Cornwall,
Intl
TR13 8WD
United Kingdom
Tel: 0845 1306225
Fax: 0845 1300262
reach@reach.org.uk
http://www.reach.org.uk

NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda
MD
20892
Tel: (301)496-5133
Fax: (301)496-7101
http://www.nih.gov/hichd/

Birth Defect Research for Children
930 Woodcock Rd
Suite 225
Orlando
FL
32803
USA
Tel: (407)895-0802
Fax: (407)895-0824
staff@birthdefects.org
http://www.birthdefects.org

Birth Defects Foundation
BDF Centre
Hemlock Way
Cannock
Staffordshire
Intl
WS11 7GF
England
Tel: 08700-707020
Fax: 01543-468999
info@bdfnewlife.co.uk
http://www.birthdefects.co.uk

MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay
WI
54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
800: (877)336-5333
mums@netnet.net
http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg
MD
20898-8126
Tel: (301)519-3194
Fax: (240)632-9164
800: (888)205-2311
TDD: (888)205-3223
gardinfo@nih.gov
http://www.genome.gov/10000409

For a Complete Report:

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated: 2/20/2009
Copyright 1989, 1999, 2000, 2009 National Organization for Rare Disorders, Inc.

WebMD Medical Reference from the National Organization of Rare Disorders

Last Updated: February 20, 2009

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