Coats' Disease

Important
It is possible that the main title of the report Coats' Diseaseis not the name you expected.

Synonyms

Coats Syndrome
Retinal Telangiectasis

Disorder Subdivisions

None

General Discussion

Coats disease is a rare disorder characterized by abnormal development of the blood vessels of the nerve-rich membrane lining the eyes (retina). Affected individuals may experience loss of vision and detachment of the retina. In most cases, only one eye is affected (unilateral). However, in rare cases, both eyes may be affected (bilateral Coats disease). In these bilateral cases, one eye is affected more than the other (asymmetric Coats disease). The specific cause of Coats disease is not known.
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Resources

National Association for Visually Handicapped
22 West 21st Street
New York
NY
10010
USA
Tel: (212)889-3141
Fax: (212)727-2931
staff@navh.org
http://www.navh.org

Chromosome
11435 Cronhill Drive
Owings Mills
MD
21117-2220
Tel: (410)568-0150
Fax: (410)363-2393
800: (800)683-5555
TDD: (800)683-5551
info@blindness.org
http://www.fightblindness.org

National Association for Parents of Children with Visual Impairments (NAPVI)
P.O. Box 317
Watertown
MA
02472
Tel: (617)972-7441
Fax: (617)972-7444
800: (800)562-6265
napvi@perkins.org
http://www.napvi.org

National Federation of the Blind
1800 Johnson Street
Baltimore
MD
21230
USA
Tel: (410)659-9314
Fax: (410)685-5653
nfb@nfb.org
http://www.nfb.org

American Council of the Blind, Inc.
1155 15th Street
Suite 1004
Washington
DC
20005
Tel: (202)467-5081
Fax: (202)467-5085
800: (800)424-8666
http://www.acb.org

American Foundation for the Blind
11 Penn Plaza
Suite 300
New York
NY
10001
Tel: (212)502-7600
Fax: (212)502-7777
800: (800)232-5463
TDD: (212)502-7662
afbinfo@afb.org
http://www.afb.org

Blind Children's Fund
311 W. Broadway
Suite 1
Mt. Pleasant
MI
48858
Tel: (989)779-9966
Fax: (989)779-0015
bcf@blindchildrensfund.org
http://www.blindchildrensfund.org

Council of Families with Visual Impairment
1155 15th St. NW
Suite 1004
Washington
DC
20005
Tel: (202)465-5081
Fax: (202)465-5085
info@acb.org
http://www.acb.org/

NIH/National Eye Institute
Building 31 Rm 6A32
31 Center Dr MSC 2510
Bethesda
MD
20892-2510
United States
Tel: (301)496-5248
Fax: (301)402-1065
2020@nei.nih.gov
http://www.nei.nih.gov/

MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay
WI
54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
800: (877)336-5333
mums@netnet.net
http://www.netnet.net/mums/

Macular Degeneration Support, Inc.
3600 Blue Ridge
Grandview
MO
64030
USA
Tel: (816)761-7080
Fax: (816)761-7080
director@mdsupport.org
http://www.mdsupport.org

For a Complete Report:

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated: 4/21/2008
Copyright 1991, 1999, 2001, 2002, 2003 National Organization for Rare Disorders, Inc.

WebMD Medical Reference from the National Organization of Rare Disorders

Last Updated: April 21, 2008

This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.