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Fragile X Syndrome

International. 55 groups. Founded 1984. Mission includes phone and e-mail support, promoting awareness, education, research and legislative advocacy regarding Fragile X syndrome, a hereditary condition which is the most common known cause of inherited mental impairment. Services also include a quarterly journal, research grants, local, national and international conferences and educational resources (books and videotapes for a fee).
Write:
National Fragile X Foundation
P.O. Box 37
Walnut Creek, CA 94597
Voice: 1-800-688-8765 (Mon.-Fri., 8:30am-5pm PST)
Fax: 925-938-9315
Website: http://www.fragilex.org
E-mail: natlfx@fragilex.org
Verified: 5/4/2010

International. 30 affiliated groups. Founded 1994. Support and information on Fragile X syndrome. Funds medical research, investigator-initiated grants and postdoctoral fellowships. Newsletter and literature. Some chapters have support group meetings. Guidelines available on starting a similar group.
Write:
FRAXA Research Foundation
45 Pleasant St.
Newburyport, MA 01950
Voice: 978-462-1866
Fax: 978-463-9985
Website: http://www.fraxa.org
E-mail: info@fraxa.org
Verified: 9/9/2010

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: 1/, 011

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.