Fragile X Syndrome
International. 30 affiliated groups. Founded 1994. Support and information on Fragile X syndrome. Funds medical research, investigator-initiated grants and postdoctoral fellowships. Newsletter and literature. Some chapters have support group meetings. Guidelines available on starting a similar group.
Write:
FRAXA Research Foundation
45 Pleasant St.
Newburyport, MA 01950
Voice: 978-462-1866
Fax: 978-463-9985
Website: http://www.fraxa.org
E-mail: info@fraxa.org
Verified: 8/30/2011
International. Founded 1984. Mission includes phone and e-mail support, promoting awareness, education, research and legislative advocacy regarding Fragile X associated disorders (fragile x sundrome, fragile X-associated tremor/ataxia syndrome and fragile X-associated primary ovarian insufficiency). Services include a quarterly journal, regional and international conferences and educational materials (free and fee-based).
Write:
National Fragile X Foundation
P.O. Box 37
Walnut Creek, CA 94597
Voice: 1-800-688-8765 (Mon.-Fri., 8:30am-5pm PST)
Fax: 925-938-9315
Website: http://www.fragilex.org
E-mail: natlfx@fragilex.org
Verified: 9/21/2011
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright � 2011 American Self-Help Group Clearinghouse. All rights reserved.
WebMD Medical Reference from the American Self-Help Clearinghouse 
Today in Children’s Health
Health Solutions From Our Sponsors
©2005-2013 WebMD, LLC. All rights reserved.
WebMD does not provide medical advice, diagnosis or treatment. See additional information.