Fragile X Syndrome
International. 30 affiliated groups. Founded 1994. Support and information on Fragile X syndrome. Funds medical research, investigator-initiated grants and postdoctoral fellowships. Newsletter and literature. Some chapters have support group meetings. Guidelines available on starting a similar group.
FRAXA Research Foundation
45 Pleasant St.
Newburyport, MA 01950
International. Founded 1984. Mission includes phone and e-mail support, promoting awareness, education, research and legislative advocacy regarding Fragile X associated disorders (fragile x sundrome, fragile X-associated tremor/ataxia syndrome and fragile X-associated primary ovarian insufficiency). Services include a quarterly journal, regional and international conferences and educational materials (free and fee-based).
National Fragile X Foundation
P.O. Box 37
Walnut Creek, CA 94597
Voice: 1-800-688-8765 (Mon.-Fri., 8:30am-5pm PST)
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