Caring for a Child With Cerebral Palsy
Risk Factors for Cerebral Palsy
Anyone can have a child with cerebral palsy, but certain conditions put your infant at higher risk:
- Exposure to infection or toxins during pregnancy.
- Circulation problems in the mother during pregnancy.
- Incompatible rhesus blood factors (the + or – associated with blood type).
- Low birth weight or prematurity.
- Multiple births.
- Breech birth or other childbirth complications.
- Severe, untreated newborn jaundice.
Treatment for Children with Cerebral Palsy
There is no cure for cerebral palsy, but early intervention can measurably improve your child's ability to manage the condition. Treatment options for children with cerebral palsy include:
- Physical therapy to help improve strength, flexibility, and balance.
- Occupational therapy to help with fine-motor and self-care skills; also to install aids for the home and essential places.
- Speech therapy to help improve communication, and possibly feeding and swallowing.
- Hearing, vision, and other assistance devices.
- Orthotic devices to improve balance and mobility.
- Medication to prevent pain or seizures, or to relax muscles.
- Surgery to improve severe cases of deformity or spasticity.
- Counselling for behavior or adjustment issues.
Social Services can be invaluable in offering support for the child, family, and caregivers, and to offer respite when needed.
Visiting nurse services can help put together packages of care as required, and they can help parents access and coordinate services when needed.
There is no one-size-fits-all approach to treating a child with cerebral palsy. Each individual will have different symptoms, abilities, and needs. Be proactive in making sure your child gets the help and support he or she needs. Whether symptoms are mild or severe, your child deserves support to reach his or her maximum potential.
Support for Parents of Children with Cerebral Palsy
Educate yourself. The more you know about cerebral palsy, the more tools you will have to help your child. Read about cerebral palsy in other sections of this Web site. Ask your child’s doctor about resources available from his or her office and on the internet. Many non-profit organizations offer information on cerebral palsy; keep up-to-date with current research.
Build a support system. Seek out local groups and parent network organizations for families of children with disabilities. Ask your doctor or specialist for referrals. Join an online chat group for parents of children with cerebral palsy.
Take care of yourself. You can’t help your child if you are burned out. Make plans to do things you enjoy, such as taking time out to have a night out with friends or family. Planning ahead so that the situation at home is safe for your child prior to going out makes this possible and more beneficial. It is so important to “recharge the batteries.”
Take care of your relationships. Find a babysitter whom you like and trust, so you and your partner can have private time together. And don't forget your other children; make sure to keep up with their activities and try to have special one-to-one time with them as often as possible.
Get help. If you or your partner is consistently burned out or depressed, or if you are not getting along, seek help. Having a disabled child can be extremely stressful; it can also put your relationship at risk. Your doctor can refer you to a qualified individual, family, or couple's therapist. It may also be that you are still at an early stage in understanding your child’s condition and the services that are available to help. Finding out more may give an enormous boost to your ability to cope.