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Hallerevorden-Spatz

NBIA Disorders Association

International network. Founded 1996. Provides emotional support to families affected by Neurodegeration with Brain Iron Accumulation - a rare progressive neurological disorder resulting in iron deposits in the brain that causes loss of muscle control. Formerly Hallervorden-Spatz syndrome. Educates public on neurodegenerations with brain iron accumulation, supports and monitors research through grants and BioBank. Newsletter, literature, bi-annual conferences, on-line listserv, family networking program and advocacy efforts.
Write:
NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92109-4235
Voice: 619-588-2315
Fax: 619-588-4093
Website: http://www.NBIAdisorders.org
E-mail: info@NBIAdisorders.org
Verified: 10/8/2008

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: November 12, 2008
This information is provided as a resource and does not constitute an endorsement for any group.  It is the responsibility of the reader to decide whether a group is appropriate for his/her needs.  For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.   
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