Mental Retardation / Down Syndrome
National. 150+ parent group networks. Founded 1974. Support, information and advocacy for families affected by Down syndrome. Promotes research and public awareness. Serves as clearinghouse and network for parent groups. Newsletter ($35/yr). Annual convention, phone support and chapter development guidelines.
National Down Syndrome Congress
1370 Center Dr., Suite 102
Atlanta, GA 30338
Voice: 1-800-232-6372 or 770-604-9500 (Mon.-Fri., 9am-5:30pm EST)
Model. 13 groups. Founded 1982. Self-help advocacy for people with developmental disabilities. Monthly chapter meetings. Members help each other resolve problems, gain self-confidence and learn leadership skills. Chapter development guidelines and newsletter.
Speaking for Ourselves
714 Market St., Suite 326
Philadelphia, PA 19106
National. 730 chapters. Founded 1950. Provides support for people with intellectual and developmental disabilities and their families. Advocacy groups and direct services. Monthly e-newsletter. Chapter development guidelines. Local group information on website.
1825 K Street NW, Ste 1200
Washington, DC 20006
Voice: 202-534-3700 (day)
Model. 33 groups in Washington. 7 high school clubs. Founded 1977. Self-help advocacy organization created by and for people with developmental disabilities. Provides help in starting new chapters. Quarterly newsletter.
People First of Washington
P.O. Box 648
Clarkston, WA 99403-2079
National. 130 affiliated groups. Founded 1983. Works to empower families of persons with intellectual disabilities through information and advocacy. Weekly e-mail updates and print newsletter for members. Networking, information and referrals, advocacy, phone support and conferences. Annual dues $40.
836 S. Arlington Heights Rd., #351
Arlington Heights, IL 60007
Online. 1300 members. Founded 1997. Opportunity for families and professionals to discuss the unique aspects of supporting a person who is dually diagnosed with Down syndrome and autism, autism-spectrum disorder, or pervasive developmental disorder.
Online. 725+ members. Founded 2001. Mutual support and sharing of ideas for parents who are, or who would like to, home school their child with Down Syndrome.
Online. 1000+ members. Founded 2000. Supportive group for families of persons with Down syndrome. Focus is on the families; not just the person with Down Syndrome.
Online. 750+ members. Founded 1999. Support for families with children diagnosed with mosaic Down syndrome (MDS). Open to adults with MDS, and professionals working with them. Newsletter, pen pals, yearly conference.
Online. Founded 2004. Provides mutual support for disabled LBGT people. Offers information, advice, online support for members. Combats the social isolation through Regard Chat for discussion and more social contacts. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices.
London, UK WC1N 3XX
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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