Moebius Syndrome

Important
It is possible that the main title of the report Moebius Syndromeis not the name you expected.

Synonyms

Congenital Facial Diplegia Syndrome
Congenital Oculofacial Paralysis
Mobius Syndrome
Moebius Sequence

Disorder Subdivisions

None

General Discussion

Moebius syndrome is a rare developmental disorder present at birth (congenital) that is characterized by facial paralysis. Affected individuals are not able to smile or frown because two important nerves, the sixth (abducens) and seventh (facialis) cranial nerves are absent or not fully developed. In some instances, this syndrome may also be associated with physical problems in other parts of the body.

Resources

Children's Craniofacial Association
13140 Coit Road
Suite 517
Dallas
TX
75240
USA
Tel: (214)570-9099
Fax: (214)570-8811
800: (800)535-3643
csmith@ccakids.com
http://www.ccakids.com

FACES: The National Craniofacial Association
P.O. Box 11082
Chattanooga
TN
37401
Tel: (423)266-1632
Fax: (423)267-3124
800: (800)332-2373
faces@faces-cranio.org
http://www.faces-cranio.org

Forward Face, Inc.
317 East 34th Street
Room 901
New York
NY
10016
Tel: (212)684-5860
Fax: (212)684-5864
800: (800)393-3223
info@forwardface.org
http://www.forwardface.org

Let's Face It (USA)
P.O. Box 29972
Bellingham
WA
98228-1972
USA
Tel: (360)676-7325
faceit@umich.edu
http://www.dent.umich.edu/faceit

AmeriFace
PO Box 751112
Las Vegas
NV
89136
USA
Tel: (702)769-9264
Fax: (702)341-5351
800: (888)486-1209
info@ameriface.org
http://www.ameriface.org

Moebius Syndrome Foundation
P.O. Box 147
Pilot Grove
MO
65276
USA
Tel: (660)834-3406
Fax: (660)834-3407
vickimc@iland.net
http://www.moebiussyndrome.com

Cleft Palate Foundation
1504 East Franklin Street
Suite 102
Chapel Hill
NC
27514-2820
USA
Tel: (919)933-9044
Fax: (919)933-9604
800: (800)242-5338
info@cleftline.org
http://www.cleftline.org

Moebius Syndrome Support Network (UK)
41 Westley Ave
Whitley Bay
Tyne and Wear
Intl
NE26 4NW
England
Tel: (0191) 253 2090
Fax: (0191) 253 2090
moebius@alex-b.net
http://www.moebius-support.org.uk

National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
8A07
Bethesda
MD
20892-2540
Tel: (301)496-5751
Fax: (301)402-2186
800: (800)352-9424
braininfo@ninds.nih.gov
http://www.ninds.nih.gov/

Society for the Rehabilitation of the Facially Disfigured, Inc.
550 First Avenue
New York
NY
10016
Tel: (212)340-5400Moebius Syndrome Association
5011 Hillside Drive
Beamsville
Ontario
L0R 1B7
Canada
Tel: (905) 563-0938
marg@ciaccess.com
http://www.ciaccess.com/moebius/msfoc/msfoc.htm

Birth Defect Research for Children
930 Woodcock Rd
Suite 225
Orlando
FL
32803
USA
Tel: (407)895-0802
Fax: (407)895-0824
staff@birthdefects.org
http://www.birthdefects.org

MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay
WI
54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
800: (877)336-5333
mums@netnet.net
http://www.netnet.net/mums/

Let Them Hear Foundation
1900 University Ave #101
East Palo Alto
CA
94303
Tel: (650)462-3143
Fax: (650)462-3143
800: (877)735-2929
info@letthemhear.org
http://www.letthemhear.org

For a Complete Report:

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated: 7/23/2007
Copyright 1987, 1990, 1995, 1998, 1999, 2000, 2005, 2007 National Organization for Rare Disorders, Inc.

WebMD Medical Reference from the National Organization of Rare Disorders

Last Updated: July 23, 2007

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