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Down Syndrome - Other Places To Get Help

Online Resource

Down Syndrome General Information
Down Syndrome: Health Issues
Web Address: www.ds-health.com/
 

A pediatrician and father of a child with Down syndrome created this site to help medical professionals and parents understand the issues facing people with Down syndrome and their families. The site features news and information, including articles about the genetics of Down syndrome, health issues related to the condition, and practical issues such as toilet training.


Organizations

American Academy of Family Physicians
P.O. Box 11210
Shawnee Mission, KS  66207-1210
Web Address: www.familydoctor.org
 

The American Academy of Family Physicians produces a variety of health-related educational materials. Its Web site offers a health library and bulletin board, news, and comments sections.


American Academy of Pediatrics
141 Northwest Point Boulevard
Elk Grove Village, IL  60007-1098
Phone: (847) 434-4000
Fax: (847) 434-8000
E-mail: kidsdocs@aap.org
Web Address: www.aap.org
 

The American Academy of Pediatrics (AAP) offers a variety of educational materials, such as links to publications about parenting and general growth and development. Immunization information, safety and prevention tips, AAP guidelines for various conditions, and links to other organizations are also available.


Down's Syndrome Medical Interest Group
Children's Centre, City Hospital Campus
Nottingham, NG5 1PB  
UK
Phone: 0115 962 7658 ext. 37905
Fax: 0115 962 7915
E-mail: info@dsmig.org.uk
Web Address: www.dsmig.org.uk
 

The Down's Syndrome Medical Interest Group (DSMIG) is an informal network of international doctors who aim to share and disseminate medical information about Down's syndrome. The Web site includes a medical library with information developed specifically by DSMIG as well as selected information from other sources.

Although the site is written and designed for health professionals, some information is written specifically for parents and caregivers. This information is intended to be helpful, but is not meant to replace direct medical consultation.


March of Dimes
1275 Mamaroneck Avenue
White Plains, NY  10605
Phone: (914) 997-4488
Web Address: www.marchofdimes.com
 

The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.


National Down Syndrome Congress (NDSC)
1370 Center Drive
Suite 102
Atlanta, GA  30338
Phone: 1-800-232-NDSC (1-800-232-6372)
(770) 604-9500
E-mail: info@ndsccenter.org
Web Address: www.ndsccenter.org
 

The National Down Syndrome Congress (NDSC) is a national advocacy organization and a major source of information, support, and empowerment for people with Down syndrome and their families. NDSC's goal is to create a climate in which all people will recognize and embrace the value and dignity of those with Down syndrome. NDSC can provide information on the nearest Down syndrome clinic in your area.


National Down Syndrome Society (NDSS)
666 Broadway
New York, NY  10012
Phone: 1-800-221-4602
Fax: (212) 979-2873
E-mail: info@ndss.org
Web Address: www.ndss.org
 

The National Down Syndrome Society (NDSS) supports individuals, families, medical researchers, and health professionals to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. NDSS also works to discover the underlying causes of Down syndrome through research, education, and advocacy. The organization distributes educational materials, encourages and supports the activities of local parent support groups, sponsors conferences and scientific symposia, and undertakes major advocacy efforts to increase public awareness and acceptance of people with Down syndrome.


National Institute of Child Health and Human Development
P.O. Box 3006
Rockville, MD  20847
Phone: 1-800-370-2943
Fax: (301) 984-1473
TDD: 1-888-320-6942
E-mail: NICHDInformationResourceCenter@mail.nih.gov
Web Address: www.nichd.nih.gov
 

The National Institute of Child Health and Human Development (NICHD) is part of the U.S. National Institutes of Health. The NICHD conducts and supports research related to the health of children, adults, and families. NICHD has information on its Web site about many health topics, and you can contact information specialists for specific requests.


The Arc
1010 Wayne Avenue
Suite 650
Silver Spring, MD  20910
Phone: 1-800-433-5255
(301) 565-3842
Fax: (301) 565-5342
E-mail: info@thearc.org
Web Address: www.TheArc.org
 

The Arc of the United States works to include all children and adults with intellectual and developmental disabilities in every community. The Arc provides information on issues that relate to people with Down syndrome and their families, such as important recent research, special programs, and updates on federal funding for people with disabilities. The organization's Web site also directs you to individual Arc chapters throughout the United States.


WebMD Medical Reference from Healthwise

Last Updated: August 09, 2007
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.
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