The Children's PKU Network is a nonprofit organization that offers networking services, resources, a hotline, and family support.

The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.

This organization publishes a newsletter, maintains a Web site, and develops other PKU-related material (such as diet information and recipes) for people with PKU and for their families. Their Web site has news and information about PKU, including information on therapies, a PKU e-mail discussion group, and links to other PKU-related Web sites.