Turner's Syndrome
National. Founded 1981. 5 chapters. Provides support and education to Turner syndrome patients and their families. Tapes, publications, referral to U.S. and Canada groups. Newsletter. Pen pal program, chapter development guidelines and annual conference.
Write:
Turner Syndrome Society of Canada
323 Chapel St.
Ottawa, ON K1N 7Z2, CANADA
Voice: 1-800-465-6744
Fax: 613-321-2268
Website: http://www.turnersyndrome.ca
E-mail: tssincan@web.net
Verified: 9/25/2008
National. 20 chapters. Founded 1987. Self-help for women, girls and their families affected by Turner syndrome. Increases public awareness about the disorder. Quarterly newsletter, chapter development assistance, advocacy, education and annual conference.
Write:
Turner Syndrome Society of the U.S.
14450 T.C. Jester, Suite 260
Houston, TX 77014
Voice: 1-800-365-9944
Fax: 832-249-9987
Website: http://www.turnersyndrome.org
E-mail: tssus@turnersyndrome.org
Verified: 9/25/2008
National network. Founded 1989. Network and exchange of information for parents of children with Turner's syndrome. Information and referrals, phone support, pen pals, conferences, literature, annual convention and newsletter. Membership: US $35yr.; Canada $50/yr.; overseas $60/yr.
Write:
Turner Syndrome Support Network
6645 W. North Ave.
c/o MAGIC Foundation
Oak Park, IL 60302
Voice: 1-800-362-4423
Fax: 708-383-0899
Website: http://www.magicfoundation.org
E-mail: mary@magicfoundation.org
Verified: 9/25/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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WebMD Medical Reference from the American Self-Help Clearinghouse 
