X-Linked Hyophosphatemia (Vitamin D Resistant Rickets)
Online. Founded 1996. Volunteer organization offering support and information for individuals and families affected by X-linked hypophosphatemia (aka X-linked hypophosphatemic rickets, familial hypophosphatemic rickets or vitamin D resistant rickets). Also open to those affected by similar disorders including autosomal dominant hypophosphatemic rickets and tumor-induced osteomalacia. Raises awareness, exchanges and disseminates information. Offers an online brochure and members listserv.
Website: http://www.xlhnetwork.org
Verified: 3/30/2011
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